The Alzheimer's Australia NSW blog *Younger Onset Dementia and ME*

*The Alzheimer's Australia NSW blog *Younger Onset Dementia and ME* is a place for people to connect with others, to get information and helpful suggestions.

A diagnosis of younger onset dementia can be very isolating. You may have received a diagnosis, be someone who is caring for a family member, or you may have a mum or dad with younger onset dementia. You are not alone. The National Younger Onset Dementia Key Worker Program provides individualised information and support to improve the quality of life for people with younger onset dementia and also see NSW - Younger Onset Dementia . For more information contact the National Dementia Helpline on 1800 100 500.

Wednesday, 15 March 2017

Children’s book for kids, teens and other with a parent with younger onset dementia - all by Australian authors!



email nsw.library@alzheimers.org.au to borrow resources
 bfn Michelle 



This Is My Family

This is a children’s book for kids with a parent with younger onset dementia.

Jack is 13 years old. He lives with his dad, mum, sister Amy and dog Sam. 

Dad has dementia. Something isn’t right in daddy’s brain and Jack can help him to do things.  This kids’ book tells the story of Jack whose father lives with younger onset dementia. 

An engaging tale for any child who knows a younger adult with dementia, it has been written by dementia care specialists, Barbara Chambers and Karen Harborow, with characters by renowned children’s animator Eddie Mort.

This 40 page kid’s picture book has been a labour of love, inspired by a young family we work with.)


 
One Photo

Told in wonderful prose, with really poignant artwork, this book is a celebration of what we hold dearest- while losing so much... is an illustrated book which explores younger onset dementia using the vehicle of photography and exploring family's legacy.

*Regarding the illustrations - "Pictures enable children to explore the world within their own imagination and make connections to characters and events they see depicted in books. When you help children connect with characters and events, you make the book more real to them."

 When Dad comes home with a camera, one of those old cameras that takes film which needs to be developed, the family, Mum and their son, watch on. He seems to be taking photos of things which have no inherent interest. There are no people in them, they are of things and places around the house. Photos of his study, of the table at breakfast time, his coffee cup, the clothesline, the bus shelter. He takes roll after roll of film to the developer in the city, bringing the photos home to stick on the window.

They find that he has put things in the cupboard that shouldn't be there, and puts the hammer in the fridge, so the reader begins to understand that this man is showing signs of dementia.

More photos appear, until one day he comes home without the camera. Then he is no longer there.

The illustrations are wonderful, showing the family in their house and all the things which will remind them of their missing father and husband. All around the house are things which he used and the photos of things important to him alongside the photo of him with his family.
This book is on the  Notables List for 2017 - contending for  the ‘Australian Picture Book of the Year’ Award
https://cbca.org.au/book/one-photo The Awards will be announced on 28th March

It is receiving great reviews (https://www.booksandpublishing.com.au/articles/2016/07/05/59296/one-photo-ross-watkins-illus-by-liz-anelli-viking/) and already the rights have been sold by Penguin for it to also be published in China, US and Canada.

Forgetting Foster

Foster Sumner is seven years old. He likes toy soldiers, tadpole hunting, going to school and the beach. Best of all, he likes listening to his dad’s stories.
But then Foster’s dad starts forgetting things. No one is too worried at first. Foster and Dad giggle about it. But the forgetting gets worse. And suddenly no one is laughing anymore.

Reviews 
Given that I have a special interest in books featuring characters suffering from dementia and Alzheimer’s disease, I can confidently say that this is an excellent addition to the fictional literature on the topic.  

The use of a child character to address an adult issue is usually a sure-fire way to show a well-worn issue in a new light and that is certainly the case here. 

Foster is sharp as a tack when it comes to the realisation that life as he knew it is slipping away, but the social nuances of the adults’ behaviour go over his head.  

Many of the self-defeating actions of Foster’s mother are brought into sharp focus when viewed through Foster’s lens and I found it harder to sympathise with her as the book went on, despite the fact that she is obviously under enormous stress and dealing with her own issues of grief and the emotional and mental, if not phsycial, loss of a husband at such an early stage in life.  

I found Foster’s aunty to be a breath of fresh air through the whole story, maintaining, as she does, an unflinching sense of optimism.  This optimism is clearly feigned at times, and even though Foster’s mother doesn’t appreciate it, it worked neatly to stop the reader from being sucked into the pit of despair along with Foster’s mother.

Forgetting Foster is certainly worth a read if you are looking for a contemporary novel that deals with grief, loss and confusion in an extremely accessible way – not to mention if you are looking for a cracking OZ  title.  

For other readers looking for nonfiction reads on the same topic, allow me to suggest Green Vanilla Tea by Marie Williams (another brilliant Aussie tale).



 Green vanilla tea
When Marie Williams' husband Dominic started buying banana Paddle Pops by the box full it was out of character for a man who was fit and health conscious. Dominic, Marie and their two sons had migrated to Australia to have a life where they shared more family time -- when gradually Dominic's behaviour became more and more unpredictable. It took nearly four years before there was a diagnosis of early onset dementia coupled with motor neurone disease. Marie began to write, as she says, as a refuge from the chaos and as a way to make sense of her changing world. Her book, Green Vanilla Tea, has just been named winner of the  Finch Memoir Prize.